About

These are my scribblings of the madness and mayhem that my bright, funny and mischievous  son and I encounter, on his weekends home.

I will also be reflecting on Johns journey, and recounting tales of his past adventures.

John is 27yrs old and has a wicked sense of humour. To feel safe he needs routine and people who know him well and who understand him.

During the week he lives in residential care with Wirral Autistic Society. He has been a resident with them for over 7 years now. John will never be independent and needs round the clock, one to one support with all aspects of his life. He is and will remain vulnerable, he has no sense of danger. However due to the love and support of  the staff who look after him, he has come a million miles in terms of his confidence and social skills. Without their expertise and high standard of care John would not be the mature, fun loving young man he is today, and our family life would be a nightmare.

When he is happy he will squeal with delight, jump up and down and slap his head.
When he is anxious or frightened he will say ‘NO’ Shake his head and refuse to cooperate.On the rare occasions that his anxiety threatens to engulf him he will even break his most treasured items. He is always upset after this happens.
Thankfully as John has matured these episodes occur much less often. He can tolerate far more situations than when he was a young child and thanks to the good practice of Wirral Autistic Society, strategies are in place to manage the problems as they arise making it easier to diffuse the situation.

John likes: Christmas, Cot Mobiles, Swing Bridges, Trains, Tower Cranes, Music, The Mersey Ferries, Goats, Chickens, Pylons, Fireworks, Ford Fiestas (1976-1983) Kites, Balloons, Big Hugs, Baby Swings, Sausages and Cake; preferably on the same plate and washing machines.

More recently John has developed a passionate relationship with, as he calls it ‘The S Boat’. It is infact a Stenna Line ferry that sails from Birkenhead to Belfast and thanks to Wirral Autistic society he has been able to take two trips on it. he also loves the Cunard cruise Liners Queen Mary 2 & her sister ship Queen Victoria.

John doesn’t like: Babies and Small Children (because they cry and are unpredictable), Dogs (because they bark and jump up) People Shouting, and sudden unexpected change in his routine.

As his mum I have experienced many difficult times due to the challenges that autism throws at you. I have cried with exhaustion, frustration and desperation; and I have fought like a lioness to protect my ‘cub’ and for his right to have the appropriate education and specialist long term support that befits his condition.

Thanks to John there has been more fun and laughter in my life than I could ever have imagined, especially in the early very difficult years, and I have met so many wonderful people along the way.
Life is never boring when he is around and once seen he is never forgotten. John leaves an impression on everyone he meets, sometimes literally, as his hugs are more like headlocks! I am hugely privileged to be his mum and to share his life.

If through reading my blog, it helps other people coping with a family member with Autism, well that would be just wonderful.

Throughout  I will be writing things as John says them phonetically. John communicates by imitating words and using sign language due to having a limited vocabulary. However people who know him well can understand him; in much the same way as mums understand what their young children are saying when no one else can.

John has no prejudices, he is not racist, sexist or homophobic. He is however massively politically incorrect because that is Autism. He sees everything as it is and says what he sees.

At the moment he has three very ‘Hot’ girlfriends, one of each…. a blonde a brunette and a red head who you will hear about throughout the blog.  He has had a boyfriend since primary school whose picture he takes everywhere, he even puts it over his face when he goes to sleep. He is also passionately in love with a Goat called Terry.

All views are those of my son John and I.

13 thoughts on “About

  1. Your commitment and love as a Mum to John come shining through in these scribblings (in your words). He is lucky to have you to share his adventures, just as you are lucky to have him. I am sure our children are sent to us to enrich our lives by teaching us as much as we teach them. We appreciate their take on the world and concepts of things around them. I am sure you will have helped people understand how much goes into being a parent to an autistic child and have certainly given us a laugh, so be assured your frustrations and tears behind the laughter have not been in vain!!!! Go forth Julie Ellsmoor and educate the world on the delights and challenges autism brings. You are doing a truly wonderful job.

    With Love – Eve X

  2. Thanks Eve I do appreciate your comments and continuing support. It means a lot to me to know that Johns story is enjoyed by so many people and hopefully it may help other families see the light at the end of the tunnel.xxx

  3. I just wanted to thank you for making this blog. The way you write is lovely. I read this page, half the time I don’t know whether I’m laughing or crying. Your positive outlook is an inspiration. Please let us know if you do write a book one day – as I will no doubt be buying it x

    • Thank you May I am delighted that you enjoyed reading it, I will be posting weekly and hope you continue to follow and enjoy the stories about John. He is a star. I intend to talk about serious issues as well as the funny stuff as I believe it is important to give a balanced view of our lives.
      Your comments are very much appreciated. As for a book, I would love to write one and will definitely keep you posted.Thanks again xx

  4. Julie, you are very much one of life’s shining stars.
    I have just read your “scribblings” out loud to my Hubby and we have giggled like schoolchildren……and if you knew my Hubby you would know that that is not an easy task to get him to laugh at 09:15 on a Monday morning!
    G xx

  5. Hi Julie, Thank you for sharing your wonderful stories about you and John’s weekend adventure’s, I have enjoyed reading them so much, I am going to print them off to show my mum (if you don’t mind ), as I am sure she will enjoy reading them, as you know she has a special spot in her heart for John, Your “scribbling’s” as you call them are written in a way that you would think they were composed by a professional author, and it is fantastic to know that your work has gone global, ( Congratulations ).
    Even though they are hilarious I am also aware that the work you do has a serious side also, as you mentioned you will be writing some articles on the more serious side of Autism, I wait with great anticipation to read them.
    Thank you once again, Love Marc E.

    • Thanks Marc its lovely to hear your comments and I am glad you enjoy reading the blog. John is a star and together I hope we are doing a little bit to raise awareness of the condition and to give an insight into family life as we know it. I hope Aunty Peg enjoys reading about what we get up to. x

  6. Hi Julie, had to get in touch, not sure if you remember me but I am Debbie Roberts who remembers your big gentle giant John from his days with us at Stanley school? My daughter who is away at university in Kingston upon Thames sent me the link to your blog today not knowing I had taught John! she just knew of my interest in autism. I still teach at Stanley and currently work in the Early Years dept. teaching children and supporting families in their early years of their journey with autism.
    I laughed and cried reading some of your entries, laughing because I could recognise so much of the John I Remembered and your wonderful honesty and positive approach. My tears because as a parent of 2 profoundly disabled children myself I can so relate with many of your emotions, struggles and dedication to your wonderful son. We are truly privileged to be Mum to these special children but boy is it hard sometimes!!!!!!
    Thank you so much for writing this blog,I will be telling my parents at school about it.
    much love, Debbie

    • Hi Debbie
      Thank you so much for getting in touch. I do remember your name but I have such a rubbish memory I can’t remember which class was yours!!
      I am touched by your kind words and delighted that you enjoyed reading the blog. John is a star and such a great subject to write about.
      You are one of life’s special people Debbie, not only through the way you have coped with your own children and the challenges their needs will have thrown at you, but because you have dedicated your life to helping other children and their families. Stanley School should be very proud to have you on their staff.
      I often think back to John’s time at Stanley school, his time there changed his life so much, and the support we received as a family was incredible. I can never thank you all enough.
      I hope you continue to enjoy the blog and share it with your friends, parents and colleagues. The more people who read and share the better for spreading awareness of autism.
      If you have an email address you can follow the blog via that and you will be notified every time I put a new post on it.
      I am hoping to turn it into a book, I have a publisher who has expressed an interest so I am keeping everything crossed. Any money raised from the sale will go to Wirral Autistic Societies Life Time Appeal.

    • Sorry Debbie I pressed send before I had finished!
      I am so glad your daughter sent you the link, it means such a lot to hear from someone who has played a big part in supporting John in his early years.
      I am in Facebook, if you are then please add me as a friend. If not you can always contact me by email on
      howl69@hotmail.co.uk
      Thanks again for taking the time to look at the blog and to leave such a lovely comment.
      Say Hi to everyone at Stanley School.
      Xx

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